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In the US, the Scleroderma Research Foundation is dedicated to raise awareness of the disease and assist those who are affected.
The Scleroderma Research Foundation sponsors research into the condition.
Comedian and television presenter Bob Saget, a board member of the SRF, directed the 1996 ABC TV movie For Hope, starring Dana Delany, which depicts a young woman fatally affected by scleroderma ; the film was based on the experiences of Saget's sister Gay.

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